|Network Centrality Analysis for #HDPalooza created by symplur.com.|
11,141 tweets were generated on June 3-4 during the conference. Visit
to study the graphic in detail.
The Health Data Bill of Rights is comprehensive. It addresses issues of data privacy and security. It supports standards for data usage. Philosophies around transparency, cost-neutral access and applications that seek to achieve public good are also underscored in the document. During the 4th Datapalooza conference that convened last week, I had the opportunity to share my opinions of the draft document in small focus-group moderated by conference organizers. It struck me, that HCHLITSS participants would be the perfect collection of individuals to contribute their feedback. So head on over and the peruse the Health Data Bill of Rights. Then be prepared to tell us exactly what you think during our tweet chat at 8:00pm E. Keep these questions in mind:
- We have a Patient Bill of Rights, but do we need a Health Data Bill of Rights? Why?
- In your experience is your health data accessible and portable? What what can improve the accessibility and potability of your personal health information?
- Do you believe health data should be shared for the public good? What are some of the health challenges you'd like to harness big, open data to solve?
- Are these principles set forth in the Health Data Bill of Rights what it takes to transform our health care system? What more may be needed?