Thursday, June 13, 2013

What Can We Gain with a Health Data Bill of Rights?


Network Centrality Analysis for #HDPalooza created by symplur.com.
11,141 tweets were generated on June 3-4 during the conference. Visit
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Aiming to be more than just an expo of the latest and greatest applications in the health care space, the Health Data Consortium (HDC), the public-private partnership behind the Health Datapalooza has drafted a Health Data Bill of Rights to articulate the founding principles and further clarify the organization's mission. In setting forth a set of shared principles the HDC  "hopes [to] create common ground amongst the many participants in the health care ecosystem in America."  It groups these participants into four categories. Developers are those individuals and entities using open data and big data to solve health care challenges. Advocates are those individuals and organizations striving for the effective use of liberated health data. Data providers are the public (government, academia) or private entities (health systems) who gather, use and publish health data. Finally innovators and the leaders and visionaries who recognized the immense economic impact to be made by health data. 

The Health Data Bill of Rights is comprehensive. It addresses issues of data privacy and security. It supports standards for data usage. Philosophies around transparency, cost-neutral access and applications that seek to achieve public good are also underscored in the document.  During the 4th Datapalooza conference that convened last week, I had the opportunity to share my opinions of the draft document in small focus-group moderated by conference organizers.  It struck me, that HCHLITSS participants would be the perfect collection of individuals to contribute their feedback. So head on over and the peruse the Health Data Bill of Rights.  Then be prepared to tell us exactly what you think during our tweet chat at 8:00pm E.  Keep these questions in mind:
  1. We have a Patient Bill of Rights, but do we need a Health Data Bill of Rights? Why?
  2. In your experience is your health data accessible and portable? What what can improve the accessibility and potability of your personal health information?
  3. Do you believe health data should be shared for the public good? What are some of the health challenges you'd like to harness big, open data to solve?
  4. Are these principles set forth in the Health Data Bill of Rights what it takes to transform our health care system? What more may be needed?

Sunday, June 2, 2013

Rob Harris aka @rob_cares Joins #HCHLITSS May 30 Transcript

drkdhoffman
Welcome to the Health Communication, Health Literacy and Social Science Twitter Chat! #HCHLITSS
             
drkdhoffman
We are so excited to have @Rob_Cares as our guest tonight! Welcome to #HCHLITSS Rob #HCHLITSS
             
rv_rikard
RT @drkdhoffman Welcome to the Health Communication, Health Literacy and Social Science Twitter Chat! #HCHLITSS
             
yayayarndiva
RT @rv_rikard: RT @drkdhoffman Welcome to the Health Communication, Health Literacy and Social Science Twitter Chat! #HCHLITSS
             
Rob_Cares
Thank you so much. I'm thrilled to be here! #HCHLITSS
             
yayayarndiva
RT @drkdhoffman: We are so excited to have @Rob_Cares as our guest tonight! Welcome to #HCHLITSS Rob #HCHLITSS
             
rv_rikard
Hello all! Please introduce yourself as you join the #hchlitss tweet chat!
             
drkdhoffman
All are welcome at #HCHLITSS...please join us and introduce yourselves on this toasty spring evening! #HCHLITSS
             
StorkBrian
@Rob_Cares Welcome to #HCHLITSS !
             
rv_rikard
RT @drkdhoffman All are welcome at #HCHLITSS...please join us and introduce yourselves on this toasty spring evening! #HCHLITSS
             
drkdhoffman
Welcome @yayayarndiva...glad to see you. #HCHLITSS
             
enBloomMedia
Great to be speaking with @Rob_Cares tonight. Hello everyone. #hchlitss
             
drkdhoffman
Welcome @StorkBrian I think you will really like tonite's chat! All about #caregiving and what men go through as #caregivers #HCHLITSS
            
rv_rikard
RT @enBloomMedia Great to be speaking with @Rob_Cares tonight. Hello everyone. #hchlitss
            
enBloomMedia
@StorkBiran good evening, great to have you joint our chat on #caregivers#hchlitss
             
drkdhoffman
Glad to have you @Rob_Cares...we are just getting going here...It got to 90 today here in Boston #HCHLITSS
             
anetto
@drkdhoffman Just met @SamuraiKnitter speaking of @yayayarndiva Hi! #hchlitss
             
CSlaterMD
Hi Everyone, Cindi in Boston enjoying the summer like weather #hchlitss
             
georgemargelis
Hi George Margelis medical practitioner with an IT bent from Sydney Australia on a pleasant Autumn day down under #hchlitss
             
rv_rikard
Folks! We welcome @Rob_Cares this evening to the #hchlitss!!
             
drkdhoffman
I'll start the introductions, I'm Kathleen Hoffman, one of the co-hosts here on #HCHLITSS #HCHLITSS
             
drkdhoffman
Welcome @anetto and @CSlaterMD #HCHLITSS
             
rv_rikard
@georgemargelis <== Good evening George! #hchlitss
             
rv_rikard
RT @drkdhoffman Welcome @anetto and @CSlaterMD #HCHLITSS
             
drkdhoffman
Welcome @georgemargelis Glad to see you here! #HCHLITSS
             
StorkBrian
@drkdhoffman Thrilled to be here Can I suggest we invite @tommyNtour to the discussion as well? http://t.co/aOSCoZufha #hchlitss
             
enBloomMedia
@georgemargelis Thanks for joining us all the way from the other side of the world ; ) #hchlitss
             
drkdhoffman
We are roasting at our house...southerners are so used to Air Conditioning--none here #HCHLITSS
             
rv_rikard
R.V. Rikard 1-.066 = 0.33 of the #hchlitss tweet chat team :)
             
drkdhoffman
Absolutely will @StorkBrian #HCHLITSS
             
enBloomMedia
Hello to everyone, I'm Alisa blogging and advocating for patients from DC and I am another 1/3 of your host team this evening #hchlitss
             
rv_rikard
RT @drkdhoffman We are roasting at our house...southerners are so used to Air Conditioning--none here <= Say what?! #HCHLITSS
             
drkdhoffman
@tommyNtour Please Join us on #caregiving#caregivers and #caring for #cancer #patients #HCHLITSS
             
enBloomMedia
Good evening @Rob_Cares we are so happy you could join our chat to discuss #caregiving this evening #hchlitss
             
drkdhoffman
@rv_rikard We have a couple of AC boxes...they don't believe in Central Air here #HCHLITSS
             
drkdhoffman
We've got a lot to cover tonight so why don't we get started with our questions. #HCHLITSS
             
nursefriendly
RT @drkdhoffman: All are welcome at #HCHLITSS...please join us and introduce yourselves on this toasty spring evening! #HCHLITSS
             
Rob_Cares
@enBloomMedia Thank you for inviting me. By the way, it's always 90 here in Orlando :-) #HCHLITSS
             
enBloomMedia
Q1) @rob_cares How long have you been caregiving? What was your wife’s diagnosis/prognosis? #hchlitss
             
rv_rikard
RT @drkdhoffman We have a couple of AC boxes...they don't believe in Central Air here <= That is pure dang evil! #HCHLITSS
             
nursefriendly
#Thursday #Healthcare Tweetchats (ET) 8p #hchlitss 9p #Medlibs #RNchat #MedEd - #nurseup #nursefriendly #hchlitss
             
rv_rikard
RT @enBloomMedia Q1) @rob_cares How long have you been caregiving? What was your wife’s diagnosis/prognosis? #hchlitss
             
enBloomMedia
@nursefriendly Welcome to the chat, nice to see you. #hchlitss
             
rv_rikard
@enBloomMedia starts the #hchlitss tweet chat off with @Rob_Cares! WOOT!!
             
nursefriendly
Hello Everyone, Andrew Lopez, RN from #NewJersey, joining #HCHLITSS #Healthcare #Tweetchat, join us :) #cphc #nurseup #rnchat #hchlitss
             
drkdhoffman
Welcome @nursefriendly Glad you could make it tonite...terrific to see you! #HCHLITSS
             
carenovatemag
@enBloomMedia @drkdhoffman @rv_rikard @Rob_Cares Hello #HCHLITSS champions #caregiving advocates. Looking forward to the chat
             
drkdhoffman
RT @enBloomMedia: Q1) @rob_cares How long have you been caregiving? What was your wife’s diagnosis/prognosis? #HCHLITSS
             
Rob_Cares
Q1A: 1990: Non-Hodgkins Lymphoma. 16 yr break and again in 2006: Sarcoma. #HCHLITSS
             
rv_rikard
@nursefriendly <= Howdy Andrew! #hchlitss
             
hchlitss
RT @enBloomMedia: Q1) @rob_cares How long have you been caregiving? What was your wife’s diagnosis/prognosis? #Hchlitss
             
Rob_Cares
Q1B: Been cancer-free, but had leg amputated and dealing with painful inflammation and erratic blood counts. #HCHLITSS
             
rv_rikard
@carenovatemag <== Evening Goldie! #hchlitss
             
drkdhoffman
Welcome @carenovatemag! great to have you #HCHLITSS
             
enBloomMedia
RT @Rob_Cares: Q1A: 1990: Non-Hodgkins Lymphoma. 16 yr break and again in 2006: Sarcoma. #hchlitss
             
nursefriendly
Thanks :) Great to be here. @drkdhoffman @rv_rikard RT @enBloomMedia@nursefriendly Welcome to the chat, nice to see you. #hchlitss
             
drkdhoffman
RT @Rob_Cares: Q1A: 1990: Non-Hodgkins Lymphoma. 16 yr break and again in 2006: Sarcoma. #HCHLITSS
             
Rob_Cares
Q1C: Chemo has affected bone marrow. Possibility of leukemia. Going thru testing now. Hoping for the best. #HCHLITSS
             
hchlitss
RT @Rob_Cares: Q1B: Been cancer-free, but had leg amputated and dealing with painful inflammation and erratic blood counts. #Hchlitss
             
drkdhoffman
RT @Rob_Cares: Q1B: Been cancer-free, but had leg amputated and dealing with painful inflammation and erratic blood counts. #HCHLITSS
             
drkdhoffman
RT @Rob_Cares: Q1C: Chemo has affected bone marrow. Possibility of leukemia. Going thru testing now. Hoping for the best. #HCHLITSS
             
nursefriendly
RT @enBloomMedia: Q1) @rob_cares How long have you been caregiving? What was your wife’s diagnosis/prognosis? #hchlitss
             
rv_rikard
Folks - please take a moment and introduce yourself! All are welcome here! #hchlitss #caregiving
             
hchlitss
RT @Rob_Cares: Q1C: Chemo has affected bone marrow. Possibility of leukemia. Going thru testing now. Hoping for the best. #Hchlitss
             
carenovatemag
@rv_rikard Hello RV. How are you.#hchlitss
             
enBloomMedia
RT @Rob_Cares: Q1C: Chemo has affected bone marrow. Possibility of leukemia. Going thru testing now. Hoping for the best. #hchlitss
             
drkdhoffman
@Rob_Cares You and your wife have been through so much! #HCHLITSS
             
carenovatemag
RT @Rob_Cares: Q1C: Chemo has affected bone marrow. Possibility of leukemia. Going thru testing now. Hoping for the best. #HCHLITSS
             
enBloomMedia
@carenovatemag Hello, glad to have you join us to discuss #caregiving #hchlitss
             
Rob_Cares
We are grateful for every day we have and look at it positively. #HCHLITSS
             
hchlitss
RT @drkdhoffman@Rob_Cares You and your wife have been through so much! #Hchlitss
             
drkdhoffman
@Rob_Cares How long had you two been married before this happened? #HCHLITSS
             
rv_rikard
Q2) @rob_cares What kind of caregiving have you been doing? #hchlitss
             
carenovatemag
@drkdhoffman TY. Glad to be here #hchlitss. Awesome guest @Rob_Cares
             
drkdhoffman
RT @Rob_Cares: We are grateful for every day we have and look at it positively. #HCHLITSS
             
nursefriendly
Join us :) #healthcare RT @rv_rikard: Folks - please take a moment and introduce yourself! All are welcome here! #caregiving #hchlitss
             
hchlitss
RT @drkdhoffman@Rob_Cares How long had you two been married before this happened? #Hchlitss
             
drkdhoffman
RT @rv_rikard: Q2) @rob_cares What kind of caregiving have you been doing? #HCHLITSS
             
Rob_Cares
10 years when the first episode occurred. #HCHLITSS
             
hchlitss
RT @rv_rikard: Q2) @rob_cares What kind of caregiving have you been doing? #Hchlitss
             
enBloomMedia
RT @rv_rikard: Q2) @rob_cares What kind of caregiving have you been doing? #hchlitss
             
CSlaterMD
RT @drkdhoffman: RT @Rob_Cares: We are grateful for every day we have and look at it positively. #hchlitss
             
nursefriendly
Going up against #cancer can change your outlook RT @Rob_Cares: We are grateful for every day we have and look at it positively. #hchlitss
             
Rob_Cares
@hchlitss Q2A: Because of inflammation and pain, hasn't been able to use prosthesis, so wheelchair enabled only. #HCHLITSS
             
enBloomMedia
Such courage & strength of spirit-->RT @Rob_Cares: We are grateful for every day we have and look at it positively. #hchlitss
             
nursefriendly
RT @rv_rikard: Q2) @rob_cares What kind of caregiving have you been doing? #hchlitss
             
drkdhoffman
RT @Rob_Cares@hchlitss Q2A: Because of inflammation and pain, hasnt been able to use prosthesis, so wheelchair enabled only. #HCHLITSS
             
anetto
Obviously has a profound effect on your lives. #hchlitss
             
carenovatemag
Hello everyone, I'm Goldie, clinical #PharmD, editor carenovate magazine for #caregivers, proud previous #hchlitss guest
             
drkdhoffman
RT @anetto: Obviously has a profound effect on your lives. <=Absolutely #HCHLITSS
             
hchlitss
So inspiring, to say the least-->RT @Rob_Cares: We are grateful for every day we have and look at it positively. #Hchlitss
             
enBloomMedia
RT @Rob_Cares@hchlitss Q2A: Because of inflammation and pain, hasnt been able to use prosthesis, so wheelchair enabled only. #hchlitss
             
Rob_Cares
@anetto Q2B: I attend all drs appts, qrtly check-ups, housekeeping, etc. Keep her spirits hi. #HCHLITSS
             
nursefriendly
I Often see marriages fall apart with catastrophic illnesses, not yours RT @Rob_Cares: 10 years when the first episode occurred. #hchlitss
             
Rob_Cares
Q3C: I'm helping her adjust to her new life at home and making every day a great day for her. We have fun & laugh. #HCHLITSS
             
hchlitss
RT @Rob_Cares@hchlitss Q2A: Because of inflammation and pain, hasnt been able to use prosthesis, so wheelchair enabled only. #Hchlitss
             
drkdhoffman
RT @Rob_Cares@anetto Q2B: I attend all drs appts, qrtly check-ups, housekeeping, etc. Keep her spirits hi. #HCHLITSS
             
drkdhoffman
RT @Rob_Cares: Q3C: Im helping her adjust to her new life at home and making every day a great day for her. We have fun & laugh. #HCHLITSS
             
carenovatemag
RT @Rob_Cares: Q3C: I'm helping her adjust to her new life at home and making every day a great day for her. We have fun & laugh. #HCHLITSS
             
nursefriendly
@Rob_Cares Loss of limbs, mobility are definite game changers :( #hchlitss
             
CSlaterMD
@Rob_Cares Do you work outside the home as well? #hchlitss
             
hchlitss
MT @hchlitss: RT @Rob_Cares@hchlitss Q2A: Because of inflammation,pain, hasnt been able 2use prosthesis/wheelchair enabled only. #Hchlitss
             
drkdhoffman
Q3) When we think caregiver we think of women/mothers? What's it like as a man being a caregiver? Did U have 2 learn new skills? #HCHLITSS
             
hchlitss
RT @Rob_Cares: Q3C: Im helping her adjust to her new life at home and making every day a great day for her. We have fun & laugh. #Hchlitss
             
drkdhoffman
RT @CSlaterMD@Rob_Cares Do you work outside the home as well? #HCHLITSS
             
NatriceR
@drkdhoffman @ABCaregivers @ncrainbowgrrl @anetto @carenovatemag @ALBUNDYTHECAT @DrEisenberg @StacyBraiuca sorry can't b there #HCHLITSS
             
Rob_Cares
@CSlaterMD Yes, I do. I travel almost every week. #HCHLITSS
             
enBloomMedia
RT @CSlaterMD@Rob_Cares Do you work outside the home as well?<--great question #hchlitss
             
rv_rikard
@Rob_Cares how do you care for yourself as a #caregiver#hchlitss
             
Rob_Cares
Q3A: I taught myself everything. I was too proud to ask others for help or advice. #HCHLITSS
             
Rob_Cares
Q3B: Taught myself everything possible about caregiving. Trial and error, mostly. #HCHLITSS
             
enBloomMedia
RT @rv_rikard@Rob_Cares how do you care for yourself as a #caregiver?<--even better question #hchlitss
             
drkdhoffman
RT @Rob_Cares@CSlaterMD Yes, I do. I travel almost every week. <=how do you all manage? #HCHLITSS
             
StorkBrian
@drkdhoffman Excellent Question MT What's it like as a man being a caregiver? Did U have 2 learn new skills? #HCHLITSS
             
CSlaterMD
who takes care of you? RT @Rob_Cares@CSlaterMD Yes, I do. I travel almost every week. #hchlitss
             
enBloomMedia
RT @Rob_Cares: Q3A: I taught myself everything. I was too proud to ask others for help or advice. #hchlitss
             
anetto
Are you working on another book as well? #hchlitss
             
hchlitss
RT @Rob_Cares: Q3A: I taught myself everything. I was too proud to ask others for help or advice. #Hchlitss
             
Rob_Cares
Q3C: Improved skills in communications, record keeping, questioning doctors and learning about her illness. #HCHLITSS
             
hchlitss
RT @Rob_Cares: Q3B: Taught myself everything possible about caregiving. Trial and error, mostly. #Hchlitss
             
drkdhoffman
RT @Rob_Cares: Q3A: I taught myself everything. I was too proud to ask others for help or advice. <=your children were young #HCHLITSS
             
enBloomMedia
RT @Rob_Cares: Q3C: Improved skills in communications, record keeping, questioning doctors and learning about her illness. #hchlitss
             
Rob_Cares
@anetto I'm editing it now! Hope to out this Fall. #HCHLITSS
             
hchlitss
RT @Rob_Cares: Q3C: Improved skills in communications, record keeping, questioning doctors and learning about her illness. #Hchlitss
             
drkdhoffman
RT @Rob_Cares: Q3C: Improved skills in communications, record keeping, questioning doctors &learning abt her illness.<=HUGE JOB! #HCHLITSS
             
Rob_Cares
My kids were...1990: They were 5 and 2; 2006: They were 21 and 18 (college & high school) #HCHLITSS
             
enBloomMedia
Q4) @rob_cares When your wife was diagnosd,how old were your children? Did U become the primary caregiver 2 children as well? #hchlitss
             
drkdhoffman
RT @hchlitss: RT @Rob_Cares: Q3B: Taught myself everything possible abt caregiving. Trial and error, mostly.<=How do U keep going? #HCHLITSS
             
Rob_Cares
Q4B: When they were young, I was traveling a lot. Relatives stayed with us. #HCHLITSS
             
hchlitss
Busy and very productive RT @Rob_Cares@anetto Im editing it now! Hope to out this Fall. #Hchlitss
             
Rob_Cares
Q4C: When they had to return to work/own lives, we hired person to care for them during the day so wife could rest. #HCHLITSS
             
giasison
Hope Im not late Hi to all! #HCHLITSS
             
rv_rikard
MT @enBloomMedia Q4) @rob_cares When your wife was diagnosd,how old were your children? Did U bcme the primry crgvr 2 children? #hchlitss
             
drkdhoffman
RT @Rob_Cares: Q4B: When they were young, I was traveling a lot. Relatives stayed with us.<=That's a blessing 2 be near relatives #HCHLITSS
             
Rob_Cares
Q4D: I gave extra effort at night trying to do both roles of dad and mom.  #HCHLITSS
             
hchlitss
MT @enBloomMedia: Q4) @rob_cares When your wife was diagnosd,how old were your kids? Did U become primary caregiver 2 as well? #Hchlitss
             
rv_rikard
@giasison You are not late at all! Welcome!! #HCHLITSS
             
CSlaterMD
Huge stressors. amazing you r thriving @Rob_Cares: Q4B: When they were young, I was traveling a lot. Relatives stayed with us. #hchlitss
             
enBloomMedia
@giasison Hi Gia, you are right on time! #hchlitss
             
anetto
It would be hard for her to give up her roles even when necessary #hchlitss
             
drkdhoffman
Welcome @giasison Glad to see you! You are never late! #HCHLITSS
             
nursefriendly
Hello Gia, glad you could stop by :) RT @giasison: Hope Im not late Hi to all! #hchlitss
             
CSlaterMD
Gia!!! Hi there :) RT @rv_rikard@giasison You are not late at all! Welcome!! #hchlitss
             
giasison
@rv_rikard Thanks RV! #hchlitss
             
rv_rikard
RT @anetto It would be hard for her to give up her roles even when necessary #hchlitss <== Absolutely!
             
Rob_Cares
@anetto She spent quality time with the boys. #HCHLITSS
             
drkdhoffman
RT @anetto: It would be hard for her to give up her roles even when necessary<=I'm sure that was hard! #HCHLITSS
             
enBloomMedia
a family support network defn. must=>RT @Rob_Cares: Q4B: When they were young, I was traveling a lot. Relatives stayed with us. #hchlitss
             
nursefriendly
Definitely a tough act to follow . . RT @Rob_Cares: Q4D: I gave extra effort at night trying to do both roles of dad and mom.  #hchlitss
             
drkdhoffman
RT @Rob_Cares: Q4D: I gave extra effort at night trying to do both roles of dad and mom. <=being both parents is HARD! #HCHLITSS
             
StorkBrian
Hello @giasison Great to have you with us! #hchlitss
             
Rob_Cares
They turned out fine. Both officers in Army. One in Afghanistan. Other just returned. #HCHLITSS
             
CSlaterMD
maybe not give up but readjust MT @rv_rikard: RT @anetto It would be hard for her to give up her roles even when necessary #hchlitss
             
hchlitss
MT @CSlaterMD: Huge stressors. amazing you r thriving @Rob_Cares: Q4B: When they were young, I was traveling lot Rel stayed w/us #Hchlitss
             
nursefriendly
@Rob_Cares Any advice you could offer other #caregivers, family that find themselves in similar situations? #hchlitss
             
anetto
@Rob_Cares That would be a huge plus, quality time with children. Strong bonds #hchlitss
             
Rob_Cares
It was the perspective we kept and still keep. We love each day we're together as a family. #HCHLITSS
             
nursefriendly
@CSlaterMD Would definitely need to re-evaluate priorities, roles, responsibilities #hchlitss
             
rv_rikard
Q5)@rob_cares Caregivrs say they R exhaustd & stressd.What advice can U give 4 caregivr stress?How do U cope? exhaustd & guilt #hchlitss
             
nursefriendly
We all hope to have that :) RT @anetto@Rob_Cares That would be a huge plus, quality time with children. Strong bonds #hchlitss
             
rv_rikard
Q5) @rob_cares Caregivrs say they R exhaustd & stressd.What advice can U give 4 caregivr stress?How do U cope? exhaustd & guilt #hchlitss
             
scottsaxe
Good evening, Rob, and all. #HCHLITSS
             
hchlitss
RT @Rob_Cares: It was the perspective we kept and still keep. We love each day were together as a family. #Hchlitss
             
drkdhoffman
RT @nursefriendly@Rob_Cares Any advic u could offer other #caregivers, family that find themselves in similar situations?<Gr8T ? #HCHLITSS
             
CSlaterMD
@Rob_Cares what do you wish ur HC providers would do differently for u and ur family? #hchlitss
             
Rob_Cares
We created an acronym: ESD = Every Stinking Day live each day as if it's our last. #HCHLITSS
             
rv_rikard
@scottsaxe Welcome! #HCHLITSS
             
drkdhoffman
RT @Rob_Cares: It was the perspective we kept and still keep. We love each day were together as a family. #HCHLITSS
             
giasison
@nursefriendly Loving the topic tonight with @Rob_Cares Hi Andrew! #hchlitss
             
nursefriendly
Those bonds help w/ coping RT @Rob_Cares It was the perspective we kept and still keep. We love each day were together as a family #hchlitss
             
Rob_Cares
@scottsaxe Hi, Scott! How are you, my good friend??? #HCHLITSS
             
drkdhoffman
Welcome @scottsaxe Great to see you! #HCHLITSS
             
DallasADixon
RT @Rob_Cares: It was the perspective we kept and still keep. We love each day we're together as a family. #HCHLITSS
             
drkdhoffman
RT @CSlaterMD@Rob_Cares what do you wish ur HC providers would do differently for u and ur family? #HCHLITSS
             
giasison
@StorkBrian Hi Brian! Likewise :-) #hchlitss
             
drkdhoffman
RT @rv_rikard: Q5) Caregivrs say they R exhaustd & stressd.What advicecan U give 4 caregivr stress?How do U cope? exhaustd & guilt #HCHLITSS
             
nursefriendly
Like that :) RT @Rob_Cares: We created an acronym: ESD = Every Stinking Day live each day as if its our last. #hchlitss
             
EmpowerMochaPt
Hi All! I'm late to the party, but I'm Meredith from Baltimore. #HCHLITSS
             
hchlitss
MT @rv_rikard: Q5) @rob_cares Caregivrs say they R exhaustd & stressd.What advice can U give 4 caregivr stress?How do U cope? #Hchlitss
             
Rob_Cares
I'm amazed at how many people I know here! Hi, Dallas! #HCHLITSS
             
drkdhoffman
Welcome @DallasADixon glad to see you here at #HCHLITSS #HCHLITSS
             
rv_rikard
@Rob_Cares this may be a weird question, do you think caregiving would be diff if your wife was diagnosed w/ a mental illness? #hchlitss
             
rv_rikard
RT @drkdhoffman Welcome @DallasADixon glad to see you here at #HCHLITSS #HCHLITSS
             
Rob_Cares
Q5A: I wouldn't allow myself to get stressed. Whatever was going to happen would happen. #HCHLITSS
             
nursefriendly
We're still here :) RT @EmpowerMochaPt: Hi All! Im late to the party, but Im Meredith from Baltimore. #hchlitss
             
enBloomMedia
@EmpowerMochaPt Welcome, great to see you. We are discussing #caregiving#hchlitss
             
drkdhoffman
Glad to have you @empowerMochaPt You're right on time! #HCHLITSS
             
rv_rikard
@EmpowerMochaPt Welcome! You are right on time! #HCHLITSS
             
Rob_Cares
Q5B: Being stressed was not going to change our set of circumstances. It also upset my wife to see me stressed. #HCHLITSS
             
drkdhoffman
MT @rv_rikard@Rob_Cares do you think caregiving would be diff if your wife was diagnosed w/ a mental illness?<=Great Question #HCHLITSS
             
enBloomMedia
RT @Rob_Cares: Im amazed at how many people I know here! Hi, Dallas!<= we aim to get our message our ; ) #hchlitss
             
Rob_Cares
Q5C: To unwind from the stress of the events we faced, we laughed a lot, joked with others and made sure #HCHLITSS
             
nursefriendly
Great perspective :) RT @Rob_Cares: Q5A: I wouldnt allow myself to get stressed. Whatever was going to happen would happen. #hchlitss
             
drkdhoffman
RT @Rob_Cares: Q5A: I wouldnt allow myself to get stressed. Whatever was going to happen would happen.<=How did you do that? #HCHLITSS
             
enBloomMedia
RT @Rob_Cares: Q5B: Being stressed was not going to change our set of circumstances. It also upset my wife to see me stressed. #hchlitss
             
hchlitss
RT @Rob_Cares: Q5B: Being stressed was not going to change our set of circumstances. It also upset my wife to see me stressed. #Hchlitss
             
Rob_Cares
Q5D: Everyone that interacted with us was in a positive frame of mind and happy as possible. #HCHLITSS
             
hchlitss
RT @Rob_Cares: Q5A: I wouldnt allow myself to get stressed. Whatever was going to happen would happen. #Hchlitss
             
Rob_Cares
Q5E: We would only watch happy shows and comedies/movies. I also went for runs for quiet time. #HCHLITSS
             
drkdhoffman
RT @Rob_Cares: Q5B: Being stressed was not going 2 change our set of circumstances. It also upset my wife 2 see me stressed.<=Wow! #HCHLITSS
             
giasison
RT @Rob_Cares: Q5B: Being stressed was not going to change our set of circumstances. It also upset my wife to see me stressed. #HCHLITSS
             
nursefriendly
@Rob_Cares Many others in difficult situations have little experience to relate to, to help them cope. #hchlitss
             
Rob_Cares
Q5F: I would nap whenever possible (when my wife slept and things war quiet). No sleep in hospital. #HCHLITSS
             
drkdhoffman
RT @Rob_Cares: Q5E: We would only watch happy shows and comedies/movies. I also went for runs for quiet time.<=running helps! #HCHLITSS
             
Rob_Cares
Q5G: I a tried to eat as healthy as possible. I communicated with "happy" family and friends only. #HCHLITSS
             
Rob_Cares
Q5H: If someone was negative or critical, they were removed from my inner circle until they changed their mood. #HCHLITSS
             
rv_rikard
RT @Rob_Cares Q5G: I a tried to eat as healthy as possible. I communicated with "happy" family and friends only. <= BINGO! #HCHLITSS
             
Rob_Cares
Q5I: We played practical jokes on doctors, committed random acts of kindness and made friends with everyone. #HCHLITSS
             
nursefriendly
@Rob_Cares Sounds like you were practicing, making #SelfCare a priority, that is so important. #hchlitss
             
rv_rikard
RT @nursefriendly @Rob_Cares Sounds like you were practicing, making #SelfCare a priority, that is so important. #hchlitss
             
enBloomMedia
Intimate knowledge of serenity prayer? RT @Rob_Cares: Q5B Being stressed wasnt going 2change our circumstances. also upset mywife #hchlitss
             
Rob_Cares
Q5J: That's how we were able to remain upbeat during the most difficult of times. #HCHLITSS
             
drkdhoffman
MT @Rob_Cares: Q5F: I would nap whenever possible (when wife slept & things war quiet) No sleep in hospital.<=U have 2 stay alert! #HCHLITSS
             
drkdhoffman
RT @Rob_Cares: Q5J: Thats how we were able to remain upbeat during the most difficult of times. #HCHLITSS
             
anetto
RT @Rob_Cares: Q5I: We played practical jokes on doctors, committed random acts of kindness and made friends with everyone. #hchlitss
             
hchlitss
RT @Rob_Cares: Q5I: We played practical jokes on doctors, committed random acts of kindness and made friends with everyone. #Hchlitss
             
hchlitss
RT @Rob_Cares: Q5E: We would only watch happy shows and comedies/movies. I also went for runs for quiet time. #Hchlitss
             
drkdhoffman
Q6) @rob_cares How do you keep a balance—not doing too much? #HCHLITSS
             
giasison
@rv_rikard @Rob_Cares I guess you applied the fact that you need to surround yourself with positive people only which is good #hchlitss
             
rv_rikard
RT @drkdhoffman Q6) @rob_cares How do you keep a balance—not doing too much? #HCHLITSS
             
jensen_jessica
RT @drkdhoffman: Q6) @rob_cares How do you keep a balance—not doing too much? #HCHLITSS
             
Rob_Cares
I must admit...I did gettired of Paula Deen's voice :-) #HCHLITSS
             
rv_rikard
@jensen_jessica Good evening and welcome! #HCHLITSS
             
drkdhoffman
MT @giasison@rv_rikard @Rob_Cares I guess you applied fact that u need 2 surround yourself w/ positive people only which is good #HCHLITSS
             
enBloomMedia
RT @rv_rikard: RT @drkdhoffman Q6) @rob_cares How do you keep a balance—not doing too much?<=seems you accomplish so very much #hchlitss
             
StorkBrian
@drkdhoffman @rv_rikard @rob_cares I think it would be very, very difficult to take care of a spouse with a mental illness #hchlitss
             
jensen_jessica
@rv_rikard Greetings and thank you! Sipping a green smoothie here. How are you? #HCHLITSS
             
giasison
Love this MT @Rob_Cares: If someone was negative/critical, they were removed from my inner circle until they changed their mood. #HCHLITSS
             
hchlitss
RT @rv_rikard: RT @drkdhoffman Q6) @rob_cares How do you keep a balance—not doing too much? #Hchlitss
             
Rob_Cares
@jensen_jessica I worked a fulltime job from the hospital. Balance was a challenge, but manageable. #HCHLITSS
             
drkdhoffman
Welcome @jensen_jessica ! #HCHLITSS
             
enBloomMedia
@jensen_jessica great to see you join in tonight. #hchlitss
             
nursefriendly
Hello Jessica, glad you stopped by :) RT @rv_rikard@jensen_jessica Good evening and welcome! #hchlitss
             
drkdhoffman
MT @Rob_Cares: I must admit...I did gettired of Paula Deens voice :-)<==does your wife really love Paula Deen? #HCHLITSS
             
rv_rikard
@jensen_jessica Trying my best to keep cool in the early summer heat! #HCHLITSS
             
Rob_Cares
We had a friend that would always say, "You poor dear." She was ousted from our group as a result. #HCHLITSS
             
Rob_Cares
@drkdhoffman I promised my wife we would meet her after she recovered. I kept that promise. #HCHLITSS
             
jensen_jessica
@enBloomMedia I just love your Twitter handle. It's as pretty as you are. #HCHLITSS
             
drkdhoffman
RT @Rob_Cares@jensen_jessica I worked a fulltime job from the hospital. Balance was a challenge, but manageable. <=WOW #HCHLITSS
             
enBloomMedia
Q7) @rob_cares What have your experiences been with nurses and physicians? #hchlitss
             
nursefriendly
@StorkBrian@drkdhoffman @rv_rikard @rob_cares Can be, the #Stigma of #MentalIllness can affect family, spouses #caregivers #hchlitss
             
rv_rikard
RT @enBloomMedia Q7) @rob_cares What have your experiences been with nurses and physicians? #hchlitss
             
drkdhoffman
RT @enBloomMedia: Q7) @rob_cares What have your experiences been with nurses and physicians? #HCHLITSS
             
Rob_Cares
Q7A: Almost 100% positive! Most are our friends today. We treated everyone like family. #HCHLITSS
             
nursefriendly
Sounds like you're going to have a LONG Summer RT @rv_rikard @jensen_jessica Trying my best to keep cool in the early summer heat! #hchlitss
             
enBloomMedia
(blushing) What a doll u r=>RT @jensen_jessica@enBloomMedia I just love your Twitter handle. Its as pretty as you are. #hchlitss
             
Rob_Cares
Q7B: The nurses, not the doctors, run the hospital. They are in charge. We made friends with them #HCHLITSS
             
hchlitss
RT @Rob_Cares: Q7A: Almost 100% positive! Most are our friends today. We treated everyone like family. #Hchlitss
             
Rob_Cares
Q7C: as soon as possible. I bought them snacks and drinks. We asked and learned about their families #HCHLITSS
             
hchlitss
RT @hchlitss: RT @Rob_Cares: Q7A: Almost 100% positive! Most are our friends today. We treated everyone like family. #Hchlitss
             
nursefriendly
Glad to hear you that :) RT @Rob_Cares: Q7A: Almost 100% positive! Most are our friends today. We treated everyone like family. #hchlitss
             
giasison
RT @enBloomMedia: Q7) @rob_cares What have your experiences been with nurses and physicians? #hchlitss
             
Rob_Cares
Q7D: When doctors came in, we did the same thing. We made them tell us about them. Nothing professional. #HCHLITSS
             
enBloomMedia
RT @Rob_Cares: Q7B: The nurses, not the doctors, run the hospital. They are in charge. We made friends with them<=smart man! #hchlitss
             
drkdhoffman
MT @Rob_Cares Had a friend that would always say,"U poor dear."She was ousted from our group as a result<=This is good advice! #HCHLITSS
             
drkdhoffman
RT @Rob_Cares: Q7B: The nurses, not the doctors, run the hospital. They are in charge. We made friends with them #HCHLITSS
             
Rob_Cares
Q7E: Some were resistant at first, but eventually, they warmed up to us. #HCHLITSS
             
drkdhoffman
RT @Rob_Cares: Q7C: as soon as possible. I bought them snacks and drinks. We asked and learned about their families #HCHLITSS
             
nursefriendly
@Rob_Cares The "Smarter" patients usually do :) (Get to know the nurses) #hchlitss
             
EmpowerMochaPt
Good point. I was caregiver 2 my Mom & gained weight from stress. Def agree with comm w/ happy friends & family only! @rob_cares #HCHLITSS
             
Rob_Cares
Q7F: Our goal was to be treated better than everyone else on the floor, especially when my wife needed them. #HCHLITSS
             
Rob_Cares
Q7G: Without a doubt, it was a great strategy. We are friends with almost all of them today. #HCHLITSS
             
nursefriendly
Difficult with questionable prognosis. RT @Rob_Cares: Q7E: Some were resistant at first, but eventually, they warmed up to us. #hchlitss
             
giasison
RT @Rob_Cares: Q7F: Our goal was to be treated better than everyone else on the floor, especially when my wife needed them. #HCHLITSS
             
drkdhoffman
Q7) Was there a difference when you received the diagnosis from the doctor? #HCHLITSS
             
rv_rikard
RT @drkdhoffman Q7) Was there a difference when you received the diagnosis from the doctor? #HCHLITSS
             
drkdhoffman
RT @Rob_Cares: Q7F: Our goal was to be treated better than everyone else on the floor, especially when my wife needed them. #HCHLITSS
             
nursefriendly
@Rob_Cares We need to maintain distance with #oncology, terminal #patients out of self-preservation. Too easy to get attached. #hchlitss
             
Rob_Cares
@nursefriendly My wife passed away and came back to life. The drs were right there for us the entire time. #HCHLITSS
             
giasison
@Rob_Cares Well said Rob and a very good goal we can all learn from #hchlitss
             
enBloomMedia
Your presence help make that happen=>MT @Rob_Cares: Q7F goal - 2Btreated better than everyone on the flor, esp when wife needed em #hchlitss
             
drkdhoffman
RT @Rob_Cares@nursefriendly My wife passed away and came back to life. The drs were right there for us the entire time. #HCHLITSS
             
rv_rikard
MT @Rob_Cares @nursefriendly My wife passed away and came back to life. <= Holy @#%%@#!!! #HCHLITSS
             
hchlitss
RT @Rob_Cares@nursefriendly My wife passed away and came back to life. The drs were right there for us the entire time. #Hchlitss
             
Rob_Cares
@rv_rikard The diagnosis could have been more sympathetic. He was quite cold when delivering the news. #HCHLITSS
             
nursefriendly
@Rob_Cares When #patients pass away, the #families are not the only ones that grieve . . :( #hchlitss
             
rv_rikard
Q8) @rob_cares How can others help in a crisis/chronic caregiving situation? #hchlitss
             
hchlitss
MT @EmpowerMochaPt: Good point. was caregiver 2 myMom & gained weight Def agree w/comm w/ happy friends & family only! @rob_cares #Hchlitss
             
hchlitss
RT @rv_rikard: Q8) @rob_cares How can others help in a crisis/chronic caregiving situation? #Hchlitss
             
nursefriendly
@Rob_Cares You have a pretty incredible story to tell, #thankyou for sharing :) #hchlitss
             
Rob_Cares
Q8A: I wrote a blog about it on my website just today. Communication is the key. Call and ask #HCHLITSS
             
drkdhoffman
@rob_cares I'm confused...did your wife have a near-death experience? #HCHLITSS
             
rv_rikard
RT @nursefriendly @Rob_Cares You have a pretty incredible story to tell, #thankyou for sharing :) <= I 2nd that!! #hchlitss
             
drkdhoffman
RT @rv_rikard: Q8) @rob_cares How can others help in a crisis/chronic caregiving situation? #HCHLITSS
             
Rob_Cares
Q8B: what the family needs. If they say they need nothing, bring them food from a restaurant, come visit #HCHLITSS
             
hchlitss
MT @enBloomMedia: Your presence help make that happen=>MT @Rob_Cares: Q7F goal - 2Btreated better than everyone on the flor #Hchlitss
             
jensen_jessica
RT @Rob_Cares@nursefriendly My wife passed away and came back to life. The drs were right there for us the entire time. #HCHLITSS
             
CSlaterMD
RT @nursefriendly@Rob_Cares You have a pretty incredible story to tell, #thankyou for sharing :) #hchlitss
             
rv_rikard
RT @drkdhoffman @rob_cares I'm confused...did your wife have a near-death experience? #HCHLITSS
             
EmpowerMochaPt
Grt advice MT@rob_cares:Q7F:Our goal was to be treated better than everyone else on the floor, especially when my wife needed them.#HCHLITSS
             
Rob_Cares
Q8C: just call the caregiver to see how she/he is doing. Outside contact is missed when stuck at home or #HCHLITSS
             
nursefriendly
@Rob_Cares@rv_rikard It is not always easy to "sugarcoat" bad news. Nor should it be. #hchlitss
             
jensen_jessica
RT @Rob_Cares: Q5H: If someone was negative or critical, they were removed from my inner circle until they changed their mood. #HCHLITSS
             
Rob_Cares
Q8D: a hospital. It's important to stay in touch with friends and family. #HCHLITSS
             
nursefriendly
Social Isolation is common. MT @Rob_Cares: Q8C: just call the caregiver to see how she/he is doing. Outside contact is missed when #hchlitss
             
hchlitss
RT @enBloomMedia: MT @Rob_Cares: Q7B: The nurses, not doctors, run hospital. They Rin charge. We made friends w/them<=smart man! #Hchlitss
             
Rob_Cares
@nursefriendly I agree. However, being so direct can be shocking and the patient/caregiver can shut down. #HCHLITSS
             
drkdhoffman
RT @Rob_Cares@rv_rikard diagnosis could have been more sympathetic. He was cold when delivering news.<=why was this? #HCHLITSS
             
jensen_jessica
Tremendous conversation going on right now. Follow #HCHLITSS for comments and questions from a quality group of caring tweeters.
             
drkdhoffman
RT @Rob_Cares: Q8C: just call the caregiver to see how she/he is doing. Outside contact is missed when stuck at home or #HCHLITSS
             
enBloomMedia
RT @nursefriendly: Social Isolation is common. MT @Rob_Cares: Q8C call the caregiver 2C how he's is doing. Outside contact missed #hchlitss
             
rv_rikard
MT @jensen_jessica Tremendous conversation going on right now. Follow #HCHLITSS for comments & ques from a quality group of caring tweeters.
             
Rob_Cares
His personality was very dry. He was direct and to the pt. No issues with that, just how he shared the news. #HCHLITSS
             
nursefriendly
@Rob_Cares #hchlitss Bedside manner can help soften the blow, not all #doctors (or #nurses) are especially skilled at it.
             
enBloomMedia
MT @jensen_jessica: Tremendous conversation going on now. Follow #HCHLITSS 4comments and ?s from quality group of caring tweeters. #hchlitss
             
scottsaxe
Follow #HCHLITSS for comments and questions from a quality group of caring tweeters. #HCHLITSS
             
drkdhoffman
MT @jensen_jessica: Tremendous convo going on rt now. Follow #HCHLITSS for comments & ?s from a quality group of caring tweeters. #HCHLITSS
             
hchlitss
MT @jensen_jessica: Tremendous conversation Follow #HCHLITSS for comments and questions from a quality group of caring tweeters. #Hchlitss
             
hchlitss
RT @Rob_Cares: His personality was very dry. He was direct and to the pt. No issues with that, just how he shared the news. #Hchlitss
             
jensen_jessica
RT @scottsaxe: Follow #HCHLITSS for comments and questions from a quality group of caring tweeters. #HCHLITSS
             
nursefriendly
@Rob_Cares No easy to to break it to #patients#caregivers, families sometimes. #hchlitss
             
Rob_Cares
My profession is human resources, so I completely understand about some direct personalities. I accept that. #HCHLITSS
             
drkdhoffman
@rob_cares Since you work in a hospital did you know better about being esp. kind to the nurses? #HCHLITSS
             
nursefriendly
RT @jensen_jessica: Tremendous conversation going on right now. Follow #HCHLITSS for comments and questions from a quality group of caring …
             
EmpowerMochaPt
RT @jensen_jessica: Tremendous conversation going on right now. Follow #HCHLITSS for comments and questions from a quality group of caring …
             
rv_rikard
RT @drkdhoffman @rob_cares Since you work in a hospital did you know better about being esp. kind to the nurses? <= Good ques! #HCHLITSS
             
Rob_Cares
What we were told is: UR let needs to be amputated w/in 72 hrs. You have a 28% to survive and you may not see the next holidays. #HCHLITSS
             
drkdhoffman
@rob_cares You said that your wife died? and then was brought back...when did this happen? #HCHLITSS
             
jensen_jessica
RT @drkdhoffman: RT @rv_rikard: Q8) @rob_cares How can others help in a crisis/chronic caregiving situation? #HCHLITSS
             
rv_rikard
RT @drkdhoffman @rob_cares You said that your wife died? and then was brought back...when did this happen? #HCHLITSS
             
enBloomMedia
Empath=necessary4medicine>MT @Rob_Cares: personality very dry He was direct & to the pt No issues w/ that, just how he shared new. #hchlitss
             
ChronicPainGPS
Hey everyone! Sorry Im tardy but wanted to catch the end with @Rob_Cares !! #hchlitss
             
Rob_Cares
In Dec., 2006. Most people see angels and bright lights..>She saw a shopping mall and Coach purses w/out price tags! Honest! #HCHLITSS
             
enBloomMedia
@Rob_Cares wow, as if he was talking 2another doc or someone on clinical team; like we have no emotional attachment to our limbs #hchlitss
             
nursefriendly
We're still here :) RT @ChronicPainGPS: Hey everyone! Sorry Im tardy but wanted to catch the end with @Rob_Cares !! #hchlitss
             
drkdhoffman
RT @Rob_Cares: Dec 2006 Most pple see angels &bright lights>She saw a shopping mall &Coach purses w/out price tags Honest<=2 funny #HCHLITSS
             
rv_rikard
@ChronicPainGPS You are not tardy at all!!! #hchlitss
             
drkdhoffman
Q9) @rob_cares Why did you write your book? #HCHLITSS
             
Rob_Cares
@enBloomMedia That's how we felt when evaluating it later (after the shock subsided). #HCHLITSS
             
rv_rikard
RT @drkdhoffman Q9) @rob_cares Why did you write your book? #HCHLITSS
             
CSlaterMD
RT @nursefriendly Were still here :) RT @ChronicPainGPS Hey everyone! Sorry Im tardy but wanted to catch the end with @Rob_Cares ! #hchlitss
             
enBloomMedia
MT @Rob_Cares: In Dec., 2006. Most people angels & bright lights=>She saw ...Coach purses w/out price tags! Honest!<-that's heaven #hchlitss
             
scottsaxe
RT @Rob_Cares:"Most people see angels and bright lights-She saw a shopping mall and Coach purses w/out prices!" Gotta love Cindy. #HCHLITSS
             
Rob_Cares
Q9A: When I was told my wife had cancer, a 28% chance to survive and could die in 4 mos., #HCHLITSS
             
hchlitss
@ChronicPainGPS Glad you could make it! #Hchlitss
             
drkdhoffman
Welcome @ChronicPainGPS #HCHLITSS
             
Rob_Cares
Q9B: I felt completely lost and helpless. Just like when 9-11 hit us. We didn't know what to do. #HCHLITSS
             
Rob_Cares
Q9C: I hated that feeling. As a result, I didn't want anyone else to feel helpless, like I did. #HCHLITSS
             
hchlitss
RT @Rob_Cares: Q9B: I felt completely lost and helpless. Just like when 9-11 hit us. We didnt know what to do. #Hchlitss
             
Rob_Cares
Q9D: I also wanted them to read our story and know that it's okay to love, laugh, cry and feel uncertain. #HCHLITSS
             
CSlaterMD
RT @Rob_Cares:"Most people see angels and bright lights-She saw a shopping mall and Coach purses w/out prices!" Gotta love Cindy. #hchlitss
             
rv_rikard
#hchlitss
             
Rob_Cares
Q9E: Along with my book being a love story, it offers 70 caregiver tips that can benefit the caregiver, #HCHLITSS
             
enBloomMedia
RT @Rob_Cares: Q9B: I felt completely lost and helpless. Just like when 9-11 hit us. We didnt know what to do.<=how cld u? #hchlitss
             
NatriceR
@drkdhoffman @Rob_Cares #HCHLITSS I know I am missing a great chat on #caregivers
             
Rob_Cares
Q9F: patient, family and friends. It puts cancer out in the open and all the emotional dilemmas that #HCHLITSS
             
enBloomMedia
RT @Rob_Cares: Q9C: I hated that feeling. As a result, I didnt want anyone else to feel helpless, like I did. #hchlitss
             
rv_rikard
RT @Rob_Cares Q9E: Along with my book being a love story, it offers 70 caregiver tips that can benefit the caregiver, #HCHLITSS
             
nursefriendly
Unfortunate, avoidable RT @Rob_Cares Q9B I felt completely lost and helpless. Just like when 9-11 hit us. We didnt know what to do #hchlitss
             
jensen_jessica
RT @Rob_Cares: Q9E: Along with my book being a love story, it offers 70 caregiver tips that can benefit the caregiver, #HCHLITSS
             
Rob_Cares
Q9G: come with it. We're human. My book speaks to that. At the same time, I learned a great deal. #HCHLITSS
             
Rob_Cares
Q9H: I felt it would have been wrong not to share what I've learned. #HCHLITSS
             
drkdhoffman
MT @Rob_Cares: Q9D: I also wanted them 2read our story &know that its ok to love laugh cry & feel uncertain<xactly what pple need #HCHLITSS
             
nursefriendly
Guys are #Fixers :( RT @Rob_Cares: Q9C: I hated that feeling. As a result, I didnt want anyone else to feel helpless, like I did. #hchlitss
             
ChronicPainGPS
Best way to help others is 2 share UR story! MT @Rob_Cares: Q9C: I didnt want anyone else to feel helpless, like I did. #hchlitss
             
enBloomMedia
RT @Rob_Cares: Q9D: I also wanted them to read our story and know that its okay to love, laugh, cry and feel uncertain.<=I get it! #hchlitss
             
Rob_Cares
Q9I: There's so much more that I continue to learn, as well. I blog about it wkly and am finishing #HCHLITSS
             
hchlitss
RT @Rob_Cares: Q9G: come with it. Were human. My book speaks to that. At the same time, I learned a great deal. #Hchlitss
             
Rob_Cares
Q9J: a second book that gives more insight into caregiving from a psych/social perspective. #HCHLITSS
             
hchlitss
MT @Rob_Cares: Q9G: come with it. Were human. My book speaks 2that. At the same time, I learned a great deal. #Hchlitss
             
drkdhoffman
RT @Rob_Cares: Q9F: patient, family & friends.It puts #cancer out in the open and all the emotional dilemmas <=many pple need this #HCHLITSS
             
anetto
@Rob_Cares Sounds like those tips would help anyone. Hard way to learn but you have valuable info for others in same role #hchlitss
             
nursefriendly
@Rob_Cares Being #Helpless is a difficult emotion for men to accept, when it our nature to "Make Things Better" #hchlitss
             
rv_rikard
@Rob_Cares what is the title of the forthcoming 2nd book? #HCHLITSS
             
nursefriendly
Sounds great RT @Rob_Cares Q9E: Along with my book being a love story, it offers 70 caregiver tips that can benefit the caregiver, #hchlitss
             
Rob_Cares
@rv_rikard "We're In This Together: A Caregiver's Guide" = book2 #HCHLITSS
             
hchlitss
MT @nursefriendly: Guys are #Fixers :( RT @Rob_Cares: Q9C: I hated that feeling...didnt want anyone else 2feel helpless, like me #Hchlitss
             
nursefriendly
:) RT @Rob_Cares: Q9D: I also wanted them to read our story and know that its okay to love, laugh, cry and feel uncertain. #hchlitss
             
drkdhoffman
MT @nursefriendly @Rob_Cares Being #Helpless is a difficult emotion 4men 2accept when it our nature 2 "Make Things Better" <RIGHT #HCHLITSS
             
hchlitss
MT @anetto@Rob_Cares Sounds like those tips would help anyone. Hard way 2learn but u have valuable info for others in same role #Hchlitss
             
rv_rikard
MT @Rob_Cares "We're In This Together: A Caregiver's Guide" <= A must read on #caregiving for everyone! #HCHLITSS
             
Rob_Cares
@nursefriendly As men, we don't share our emotions. I held them back, as well.I learned as I went along that it was okay. #HCHLITSS
             
drkdhoffman
@rob_cares How did you deal with that "being a fixer" mentality? #HCHLITSS
             
EmpowerMochaPt
RT @Rob_Cares: Q9H: I felt it would have been wrong not to share what I've learned. #HCHLITSS
             
rv_rikard
RT @drkdhoffman @rob_cares How did you deal with that "being a fixer" mentality? <==Good question! #HCHLITSS
             
hchlitss
@Rob_Cares Any closing thoughts as the hour approaches its end? #Hchlitss
             
rv_rikard
RT @hchlitss @Rob_Cares Any closing thoughts as the hour approaches its end? #Hchlitss
             
drkdhoffman
@rob_cares Is your first book still available? #HCHLITSS
             
Rob_Cares
Current book will have you laughing and crying - I promise :-). "We're In This Together: A Caregiver's Story" #HCHLITSS
             
drkdhoffman
RT @Rob_Cares@nursefriendly As men we dont share our emotionsI held them back as well.I learned as Iwent along that it was okay. #HCHLITSS
             
Rob_Cares
@rv_rikard I'm so grateful for having me as your guest. I'm honored to be here. If I can help anyone you know, please contact me. #HCHLITSS
             
nursefriendly
@Rob_Cares Yes, we tend to hold it all inside. That would be too tall of an order, in a situation like yours. #hchlitss
             
ChronicPainGPS
Cant wait to share it! MT @Rob_Cares: Q9E: Book is a love story & offers 70 #caregiver tips to benefit CG, Pt, family/friends #hchlitss
             
rv_rikard
@Rob_Cares thank you man for being our guest tonight! You are a salt of the earth dude! #hchlitss
             
enBloomMedia
That's insight=>MT @Rob_Cares @nursefriendly As men, we dont share emotions. held back, I learned as I went along that it was ok. #hchlitss
             
Rob_Cares
http://t.co/ui4EHeJ6oc and Barnes and http://t.co/TQeFQBUlfG for 1stbook. #HCHLITSS
             
rv_rikard
RT @Rob_Cares http://t.co/cdc5aq67Zz and Barnes and http://t.co/ujhqPbhFUe for 1stbook. #HCHLITSS
             
hchlitss
RT @Rob_Careshttp://t.co/TN2WKZktp0 and Barnes and http://t.co/7nT5CBzguk for 1stbook. #Hchlitss
             
CSlaterMD
Looking forward @Rob_Cares Current book will have u laughing & crying -promise :-). "We're In This Together: A Caregiver's Story" #hchlitss
             
drkdhoffman
@rob_cares I hate for this to end...thank you so much for being here tonight and sharing your story... #HCHLITSS
             
nursefriendly
#Thankyou for sharing :) RT @rv_rikard@Rob_Cares thank you man for being our guest tonight! You are a salt of the earth dude! #hchlitss
             
drkdhoffman
RT @Rob_Careshttp://t.co/8KTCj2wB9B and Barnes and http://t.co/oZMgzfgkWt for 1stbook. #HCHLITSS
             
scottsaxe
Great job tonight, @Rob_cares. Thanks for sharing so much wonderful information! #Caregiver #HCHLITSS #HCHLITSS
             
Rob_Cares
It was a great time! Thank you for the invite! #HCHLITSS
             
rv_rikard
Folks, thank you for being a part of the #hchlitss tweet chat tonight! *You* are the #hchlitss tweet chat!
             
enBloomMedia
@Rob_Cares thank you for sharing your journey and discovery in #caregiving with us; ditto "salt of the earth" #hchlitss
             
ChronicPainGPS
So impt 4 ppl 2 know its OK! MT @Rob_Cares: Q9D: Wanted them 2 read our story, know its okay 2 love, laugh, cry and feel uncertain #hchlitss
             
drkdhoffman
@rob_cares What an incredible gift to have you here! Thank you so much for sharing so much wonderful information! What a gift! #HCHLITSS
             
enBloomMedia
Thanks to everyone for joining in our talk on #caregiving tonight because you are the reason we are here! #hchlitss
             
rv_rikard
My thanks to my more than groooovy awesome co-hosts => @enBloomMedia and @drkdhoffman #hchlitss